Caregiving
You may not think of yourself as a caregiver. You may feel you are doing something natural. You are just caring for someone you love. Some caregivers are family members. Others are friends.
What does "giving care" mean?
Giving care can mean helping with daily needs. These include going to doctor visits, making meals, and picking up medicines. It can also mean helping your loved one cope with feelings. Like when he or she feels sad or angry. Sometimes having someone to talk to is what your loved one needs most.
While giving care, it's normal to put your own needs and feelings aside. But putting your needs aside for a long time is not good for your health. You need to take care of yourself, too. If you don't, you may not be able to care for others. This is why you need to take good care of you.
Your Feelings
It's common to feel stressed and overwhelmed at this time. Like your loved one, you may feel angry, sad, or worried. Try to share your feelings with others who can help you. It can help to talk about how you feel. You could even talk to a counselor or social worker.
Understanding your feelings
You probably have many feelings as you take care of your loved one. There is no right way for you to feel. Each person is different.
The first step to understanding your feelings is to know that they're normal. Give yourself some time to think through them. Some feelings that may come and go are:
- Sadness. It's okay to feel sad. But if it lasts for more than 2 weeks, and it keeps you from doing what you need to do, you may be depressed.
- Anger. You may be angry at yourself or family members. You may be angry at the person you're caring for. Or you may be angry that your loved one has cancer. Sometimes anger comes from fear, panic, or stress. If you are angry, try to think of what makes you feel this way. Knowing the cause may help.
- Grief. You may be feeling a loss of what you value most. This may be your loved one's health. Or it may be the loss of the day-to-day life you had before the cancer was found. Let yourself grieve these losses.
- Guilt. Feeling guilty is common, too. You may think you aren't helping enough. Or you may feel guilty that you are healthy.
- Loneliness. You can feel lonely, even with lots of people around you. You may feel that no one understands your problems. You may also be spending less time with others.
What may help
Talk with someone if your feelings get in the way of daily life. Maybe you have a family member, friend, priest, pastor, or spiritual leader to talk to. Your doctor may also be able to help.
Here are some other things that may help you:
- Know that we all make mistakes whenever we have a lot on our minds. No one is perfect.
- Cry or express your feelings. You don't have to pretend to be cheerful. It's okay to show that you are sad or upset.
- Focus on things that are worth your time and energy. Let small things go for now. For example, don't fold clothes if you are tired.
- Remind yourself that you are doing the best you can.
- Spend time alone to think about your feelings.
Asking for Help
Many people who were once caregivers say they did too much on their own. Some wished that they had asked for help sooner. Be honest about what you can do. Think about tasks you can give to others. And let go of tasks that aren't so important at this time.
Asking for help also helps your loved one.
Don't be afraid to ask for help. Remember, if you get help for yourself:
- You may stay healthier and have more energy.
- Your loved one may feel less guilty about your help.
- Other helpers may offer time and skills that you don't have.
How can others help you?
People may want to help you but don't know what you need. Here are some things you can ask them to do:
- Help with tasks such as:
- Cooking
- Cleaning
- Shopping
- Yard Work
- Childcare
- Eldercare
- Talk with you and share your feelings.
- Help with driving errands such as:
- Doctor visits
- Picking up your child
- Find information you need.
- Tell others how your loved one is doing.
Know that some people may say, "No."
Some people may not be able to help. There could be one or more reasons such as:
- They may be coping with their own problems.
- They may not have time right now.
- They may not know how to help.
- They may feel uneasy around people who are sick.
Caring for Yourself
Making time for yourself
Taking time for yourself can help you be a better caregiver. That's even more true if you have health problems.
You may want to:
- Find nice things you can do for yourself. Even just a few minutes can help. You could watch TV, call a friend, work on a hobby, or do anything that you enjoy.
- Be active. Even light exercise such as walking, stretching, or dancing can make you less tired. Yard work, playing with kids or pets, or working in the garden are helpful, too.
- Find ways to connect with friends. Are there places you can meet others who are close to you? Or can you chat or get support by phone or email?
- Give yourself more time off. Ask friends or family members to pitch in. Take time to rest.
Do something for yourself each day. It doesn't matter how small it is. Whatever you do, don't neglect yourself.
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Recommended Links
Balancing Work, Family and Caregiving - University of Maine Cooperative Extension
Caregiver Stress - American Academy of Family Physicians
Caregiving, What Is It and Who Does It? - University of Maine Cooperative Extension
Caring for a Loved One With Dementia - American Academy of Family Physicians
Coping With the Death of a Loved One - University of Maine Cooperative Extension
Information for Caregivers - American Academy of Family Physicians
10 Tips for Family Caregivers - National Family Caregivers Association
Support for Caregivers - University of Maine Cooperative Extension
Top 10 Tips for Taking an Elderly Patient to the Emergency Department - American College of Emergency Physicians - Adult Day Care - Administration on Aging
- Aging Parents and Elder Care - Solutions for Seniors
- Alternatives To Nursing Home Care - Medicare.gov
- Caregiver.com
- Caregiver Financial Information - Medicare.gov
- Caregiver Health - American Medical Association
- Caregiver Stress - MayoClinic.com
- Caregiver Stress - WomensHealth.gov
- Caregiver Stress and Elder Abuse - National Center on Elder Abuse
- Caregiver's Guide for Special Needs
- Caregiver's Guide to Medications and Aging - Family Caregiver Alliance
- Caregivers and Exposure to Chemotherapy - ONCOLink Cancer site
- Caregiving Across the States: A State-by-State Resource - Family Caregiver Alliance
- Caregiving Blog - Center for Family Caregivers
- Caregiving: How to Ask for Help - MayoClinic.com
- Caregiving in an Emergency - Family Caregiver Alliance
- Caregiving: Tips for Long Distance Caregivers - MayoClinic.com
- Caregiving Toolbox - National Family Caregivers Association
- Caring for Adults with Cognitive and Memory Impairments - Family Caregiver Alliance
- Caring for Someone with AIDS at Home - Centers for Disease Control and Prevention
- Caring for the Caregiver - National Cancer Institute
- Caring for the Elderly: Dealing with Resistance - MayoClinic.com
- Caring for Someone with Developmental Disabilities - Administration on Aging
- Caring for Yourself and a Stroke Survivor - National Stroke Association
- Caring from a Distance
- Community Care Options - Family Caregiver Alliance
- Community-Based Care - AGS Foundation for Health in Aging
- Dental Care Everyday: Caregivers Guide - National Institute of Dental and Craniofacial Research
- Dying Process--A Guide for Family Caregivers - National Hospice and Palliative Care Organization
- Eldercare at Home - AGS Foundation for Health in Aging
- Eldercare Locator - Administration on Aging
- Emergency Readiness for Older Adults and Caregivers - Administration on Aging
- Families with Special Needs: Caregiving Tips - Centers for Disease Control and Prevention
- Family Care Navigator: State-by-State Help for Family Caregivers - Family Caregiver Alliance
- Family Caregiver Alliance
- Family Caregivers in Cancer (PDQ) - National Cancer Institute
- For Caregivers, Family & Friends - National Cancer Institute
- Glossary - Beth Israel Medical Center, Dept. of Pain Medicine and Palliative Care
- Guide for Caregivers - National Multiple Sclerosis Society
- Guidelines for Better Communication - Family Caregiver Alliance
- Hands-On Skills for Caregivers - Family Caregiver Alliance
- Holding a Family Meeting - Family Caregiver Alliance
- Home Away from Home: Relocating Your Parents - Family Caregiver Alliance
- Hospital Discharge Planning - Family Caregiver Alliance
- How to Assemble a Caregiving Team - Fisher Center for Alzheimer's Research Foundation
- Improving Doctor/Caregiver Communication - National Family Caregivers Association
- Information for Caregivers About Personal Health Records- American Health Information Management Association
- Information Caregivers Can Use on: Speaking with a Friend or Family Member's Doctor During an Office Visit - Medicare.gov
- KidsHealth for Parents: Managing Home Health Care - KidsHealth/Nemours Foundation's Center for Children's Health Media
- KidsHealth for Parents: How To Care for a Seriously Ill Child - KidsHealth/Nemours Foundation's Center for Children's Health Media
- KidsHealth for Parents: Taking Care of You: Support for Caregivers - KidsHealth/Nemours Foundation's Center for Children's Health Media
- Legal Issues for LGBT Caregivers - Family Caregiver Alliance
- LGBT Caregiving: Frequently Asked Questions - Family Caregiver Alliance
- Lifting Techniques for Home Caregivers - American Academy of Orthopedic Surgeons
- Long Distance Caregiving - National Institute on Aging
- Lotsa Helping Hands
- Making Choices about Everyday Care (for Families) - Family Caregiver Alliance
- Medicare Basics - Medicare.gov
- MedlinePlus: Caregivers - National Library of Medicine
- National Alliance for Caregiving
- National Family Caregiver Support Program - Administration on Aging
- National Family Caregivers Association
- Caring for Someone With Alzheimer's - NIH Senior Health
- Online Community for Caregivers - AgingCare.com
- Rehab Tip Sheets for Providers and Caregivers on Performing Common Activities - University of Alabama at Birmingham
- Respite Care - Administration on Aging
- Taking Care of You: Self-Care for Family Caregivers - Family Caregiver Alliance
- What Are the Caregiver's Rights? - American Heart Association
- What Is Caregiver Burnout? - American Heart Association
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Páginas de Web Recomendadas
CaregiverNJ - Departamento de Salud y Servicios para Ancianos de New Jersey
Cuidador - Biblioteca de Información sobre la Salud del MCG Health System (Augusta, GA)
Cuidados y Enfermedades del Anciano - Tu Otro Médico (España)
¡Cuidemos a los Cuidadores Informales! - Collegi de Farmacèutics de la Província de Barcelona (España)
Estrés en la Persona Que Provee Cuidados - Academia Estadounidense de Médicos de Familia
Manual del Cuidador - Administración Servicios para Ancianos y Adultos/Departamento de Servicios Sociales y de la Salud del Estado de Washington
Para el Cuidador: Consejos para Enfrentar la Situación - Centro de Medicina Hospital Overlake (Washington)/Krames Información para Pacientes
¿Quién Cuida a los Mayores? - Puleva Salud (España)
Un Enfermo en la Familia - Puleva Salud (España)
- Abogando por los Hijos - Academia Americana de Psiquiatría del Niño y del Adolescente
- Apoyo a los Cuidadores de las Personas Mayores Dependientes - NetDoctor (España)
- Atención en el Hogar para Pacientes con Cáncer - Instituto Nacional del Cáncer
- ¿Ayuda Usted a una Persona con Medicare?: Información para Ayudarle a Cuidar de Otros - Medicare.gov
- Bajo Presión: La Prevención de las Úlceras por Presión - ADVANCE para Enfermeras
- Cáncer: Cuando Usted Es Quien Provee los Cuidados - Academia Estadounidense de Médicos de Familia
- Cáncer: Puntos Para Considerar acerca del Fin de la Vida para Quien Provee Cuidados - Academia Estadounidense de Médicos de Familia
- Consejos para Cuidadores – Alzheimer’s Association
- Consejos para Hermanos e Hijos Adultos de Personas que Tienen Enfermedades Mentales en - Alianza Nacional de Enfermedades Mentales
- Cuidado de la Familia Después de una Lesión Cerebral - Centro de Medicina Hospital Overlake (Washington)/Krames Información para Pacientes
- Cuidado de Salud en el Hogar - Centro Nacional de Información sobre la Salud de la Mujer
- Cuidado del Paciente - Sociedad Estadounidense de Oncología Clínica
- Cuidados del Cuidador - Discapnet/Fundación ONCE y Technosite (España)
- Cuidados en Casa - Clínica Universidad de Navarra (España)
- Cuidando al Enfermo con la Enfermedad de Alzheimer - Fundación de la Salud Mental Geriátrica
- Cuidar a los Mayores - Eroski Consumer/Fundación Eroski (España)
- Demencia: Consejos para los Cuidadores - Centro de Medicina Hospital Overlake (Washington)/Krames Información para Pacientes
- Demencia: Información y Consejo para Quienes Proveen Cuidados - Academia Estadounidense de Médicos de Familia
- Enciclopedia Médica en MedlinePlus - Biblioteca Nacional de Medicina de EE.UU.
- Enfermedad de Parkinson: Consejos para los Cuidadores - Centro de Medicina Hospital Overlake (Washington)/Krames Información para Pacientes
- Enfermedad Pulmonar Crónica: Consejos para los Cuidadores - Centro de Medicina Hospital Overlake (Washington)/Krames Información para Pacientes
- Enfermedad Pulmonar Crónica, Cuidado Diario: Para los Cuidadores - Centro de Medicina Hospital Overlake (Washington)/Krames Información para Pacientes
- Enfermedades y Discapacidades: Apoyo para Cuidadores - Centro Nacional de Información sobre la Salud de la Mujer
- Guía Para el Manejo Seguro de Pacientes - ADVANCE para Enfermeras
- Guίa para Padres Con Niños(as) que Necesitan Cuidado Especializado (inglés/español) - Centro para Niños con Necesidades Especiales/Seattle Children’s Hospital
- Guía para Quienes Cuidan Personas con la Enfermedad de Alzheimer - Instituto Nacional Sobre el Envejecimiento
- healthfinder® en Español - Oficina de Prevención de Enfermedades y Promoción de la Salud y el Centro Nacional de Información sobre la Salud de los EE.UU.
- Información de Medicare para Los Que Cuidan de Otra Persona: Hable con el Médico de Su Amigo o Familiar - Medicare.gov
- Llagas por Presión - Academia Estadounidense de Médicos de Familia
- MedlinePlus: Proveedor de Atención al Paciente - Biblioteca Nacional de Medicina de EE.UU. desde los Institutos Nacionales de la Salud
- Organizaciones Nacionales que Brindan Servicios a las Personas con Cáncer y a Sus Familias - Instituto Nacional del Cáncer
- Padres: Cuidado de un Niño Enfermo de Gravedad - KidsHealth/Centro de Medios de Información para la Salud Infantil de la Fundación Nemours
- Para los Cuidadores: Consejos de Seguridad para Pacientes con Demencia - Centro de Medicina Hospital Overlake (Washington)/Krames Información para Pacientes
- Personas Dependientes - Puleva Salud (España)
- Preparación para el Cuidado en Casa Después de un Ataque Cerebral - Centro de Medicina Hospital Overlake (Washington)/Krames Información para Pacientes
- Prevención y el Tratamiento de las Úlceras por Presión - ADVANCE para Enfermeras de Práctica Avanzada
- Protección en el Hogar para las Personas con la Enfermedad de Alzheimer - Instituto Nacional Sobre el Envejecimiento
- Recursos en Español para Cuidadores - Alianza Familiar de Personas que Cuidan Enfermos
- Retardo Mental: Lo Que Las Personas Encargadas de Proveer Cuidados Deben Saber - Academia Estadounidense de Médicos de Familia
- Salud en Hogar, Hospicio y Cuidado de Ancianos - Biblioteca de Información sobre la Salud del MCG Health System (Augusta, GA)
- Seguridad Contra Incendios: Personas con Discapacidad y Personas Encargadas de Su Cuidado - Administración de Incendios de Estados Unidos
- Su Lista de Verificación: Guía para los Pacientes Que Están por Salir de una Dependencia y
las Personas Que los Cuidan – Medicare.gov
- Úlcera por Presión, Prevención y Posición - ADVANCE para Enfermeras
- Vivir con un Enfermo de Alzheimer - Ediciones Farmavet, S.L. (España)