Recommended Web Sites

Genetic Disorders

Basics on Genes and Genetic Disorders - Intended for teens, this site from KidsHealth provides a general explanation, links to related articles on the site, and links to additional information.

FAQ About Genetic Disorders - The National Human Genome Research Institute provides these questions and answers.

Genes and Populations - The National Institute of General Medical Sciences offers this information in English and in Spanish.

Genetic Disorders from NOAH - NOAH, New York Online Access to Health, is maintained by a group of organizations that include the New York Academy of Medicine, the New York City Department of Health, and the New York Hospital-Cornell Medical Center. The information obtained at this web site can be accessed in English or Spanish and includes links to information on genetic testing and couseling, gene therapy, and specific diseases.

Genetic and Rare Conditions - Medical Genetics, University of Kansas Medical Center provides these resources on specific genetic diseases.  Also organizations, advocacy, and information for children and teens.

March of Dimes: Birth Defects and Genetics - This fact sheet will provide information on the prevention, causes, and common types of birth defects as well as diagnosis and treatment before birth.

MEDLINEplus: Genetic Disorders - Developed by the National Library of Medicine, this consumer health site directs the user to selected online resources on many common diseases and conditions. 

MEDLINEplus: Genetics/Birth Defects Topics - Developed by the National Library of Medicine, this consumer health site directs the user to selected online resources on many common diseases and conditions. 

Genetic Testing and Counseling

At-Home Genetics Tests - The Federal Trade Commission explains why these aren't always the best idea.

Cancer Genetics Services Search - Search for cancer genetics professionals.   You can limit by city/state or by name.

GeneTests·GeneClinics - Produced by the University of Washington, this site provides comprehensive reviews on genetic diseases, directories of genetics laboratories and genetic clinics, and information about genetic counseling and testing.

MayoClinic.com: Genetic Testing: Weighing Its Benefits and Risks - MayoClinic.com gives you access to the experience and knowledge of the more than 2,000 physicians and scientists of the Mayo Clinic. One will find information on the advantages and limitations of genetic testing at this site.

MEDLINEplus: Genetic Testing/Counseling - Developed by the National Library of Medicine, this consumer health site directs the user to selected online resources on many common diseases and conditions.

Studying How Your Genes Can Make a Difference - Click here to read more about genes and the study of genetics and how that affects what medicines you can take safely.

Tests Purchased From 4 Sites Mislead Consumers - The General Accounting Office found misleading information in relation to genetics tests and nutrition.

Understanding Gene Testing - Another tutorial produced by the NCI.  Easy to navigate and beautifully illustrated.

What is Genetic Testing? - The Genetics Home Reference site offers this explanation.

Gene Therapy

Gene Therapy - A fairly plain description of gene therapy.

Gene Therapy and Your Child - Intended for parents, this site from KidsHealth, provides a general explanation, links to related articles on the site, and links to additional information.

Gene Therapy Trials - Clinical trials involving gene therapy.  Eligibility, location, and contact information are included.

MEDLINEplus: Genes and Gene Therapy - Developed by the National Library of Medicine, this consumer health site directs the user to selected online resources on many common diseases and conditions. 

Personalized Medicine - The Mayo Clinic explains how your medications can be tailored to your genetic needs.