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Recommended Web Sites
 Genetics
Home Reference - Welcome to Genetics
Home Reference, the National Library of Medicine's
web site for consumer information about genetic conditions
and the genes or chromosomes responsible for those
conditions.
The
Importance of Gathering a Family History
- The American Medical Association offers this advice
on why keeping family medical records is important.
An
Introduction to Genetics and Genetic Testing
- Intended for parents, this site from KidsHealth
provides a general explanation, links to related articles
on the site, and links to additional information.
Questions
and Answers About Gene Therapy - Answers to
common questions with links to definitions for many
of the terms; from the National Cancer Institute.
Genes, What We Knew, Know and Hope to Learn - The National Institute of General Medical Sciences provides this information.
Glossary of Genetic Terms - The National Human Genome Research Institute provides
this glossary which includes definitions, pronunciation,
audio explanations, and links to related terms.
JAMA Patient Page: Genetics: The Basics - The American Medical Association supplies this information.
New Genetics - Learn more about genetics, in this online book from the National Institute of General Medical Sciences.
Six Things Everyone Should Know About Genetics - This information is courtesy of the American Society of Human Genetics.
You and Your Genes: Making It in a Tough Environment- Although designed for students, this site, from the National Institute of Environmental Health Sciences, contains good information.
Your Genes, Your Health - Excellent information on genetics from the Dolan DNA Learning Center.
Genetic Disorders | Genetic
Testing and Counseling | Gene
Therapy
Genetic
Disorders
Basics
on Genes and Genetic Disorders - Intended for
teens, this site from KidsHealth provides a general
explanation, links to related articles on the site,
and links to additional information.
FAQ About Genetic Disorders - The National Human Genome Research Institute provides these questions and answers.
Genetic
Disorders from NOAH - NOAH, New York Online
Access to Health, is maintained by a group of organizations
that include the New York Academy of Medicine, the New
York City Department of Health, and the New York Hospital-Cornell
Medical Center. The information obtained at this web
site can be accessed in English or Spanish and includes
links to information on genetic testing and couseling,
gene therapy, and specific diseases.
Genetic and Rare Conditions
- Medical Genetics, University of Kansas Medical Center
provides these resources on specific genetic diseases.
Also organizations, advocacy, and information for children
and teens.
Human Genetic Variation - The National Institute of General Medical Sciences offers this information.
March of Dimes: Birth Defects and Genetics -
This fact sheet will provide information on the prevention,
causes, and common types of birth defects as well as
diagnosis and treatment before birth.
MedlinePlus:
Genetic Disorders - Developed by the National
Library of Medicine, this consumer health site directs
the user to selected online resources on many common
diseases and conditions.
MedlinePlus:
Genetics/Birth Defects Topics - Developed by
the National Library of Medicine, this consumer health
site directs the user to selected online resources on
many common diseases and conditions.
Genetic
Testing and Counseling
At-Home Genetics Tests - The Federal Trade Commission explains why these aren't always the best idea.
Cancer Genetics
Services Search - Search for cancer genetics
professionals. You can limit by city/state
or by name.
Frequently Asked Questions about Genetic Testing - Answers to the questions, from the National Human Genome Research Institute.
GeneTests·GeneClinics
- Produced by the University of Washington, this site
provides comprehensive reviews on genetic diseases,
directories of genetics laboratories and genetic clinics,
and information about genetic counseling and testing.
Genetic Testing - The Mayo Clinic provides this explanation.
Genetic Testing: How It Is Used for Healthcare - More great information from the National Institutes of Health.
Looking at My Genes: What Can They Tell Me? Find out from the National Institute of Mental Health.
MedlinePlus:
Genetic Testing/Counseling and MedlinePlus: Newborn Screening - Developed by the
National Library of Medicine, this consumer health site
directs the user to selected online resources on many
common diseases and conditions.
Newborn Screening Tests - Find out the importance of these tests, from the March of Dimes Birth Defects Foundation.
Parentage Testing - Learn more about this type of testing from the American Association for Clinical Chemistry.
Pregnancy and Prenatal Testing - LabTestsOnline offers this information.
Studying
How Your Genes Can Make a Difference -
Click here to read more about genes and the study of
genetics and how that affects what medicines you can
take safely.
Talk with Your Doctor About Newborn Screening - The Office of Disease Prevention and Health Promotion has provided this fact sheet.
Tests Purchased From Four Sites Mislead Consumers - The General Accounting Office found misleading information in relation to genetics tests and nutrition.
Understanding
Gene Testing - Another tutorial produced by
the NCI. Easy to navigate and beautifully illustrated.
What is Genetic Testing? - The Genetics Home Reference site offers this explanation.
Gene
Therapy
American
Society of Gene Therapy: Gene Therapy Terminology - A glossary of terms associated with gene therapy can
be found here.
Human Gene Therapy - The Food and Drug Administration has supplied this information.
From Genes to Personalized Medicine - Learn more about how treatments can be tailor-made with this information from the National Institutes of Health.
Gene
Therapy and Your Child - Intended for parents,
this site from KidsHealth, provides a general explanation,
links to related articles on the site, and links to
additional information.
Gene
Therapy Trials - Clinical trials involving gene
therapy. Eligibility, location, and contact information
are included.
MedlinePlus:
Genes and Gene Therapy - Developed by the National
Library of Medicine, this consumer health site directs
the user to selected online resources on many common
diseases and conditions.
Personalized Medicine - The Mayo Clinic explains how your medications can be tailored to your genetic needs.
Personalized Medicines Fact Sheet - More great information from the National Institute of General Medical Sciences.
Genetics Home Reference: What is gene therapy? - The National Library of Medicine offers this information.
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