Recommended Web Sites

Fraxa - The Fragile X Research Foundation sponsors this site, which is full of quality information.

KidsHealth for Parents: Muscular Dystrophy OR Turner Syndrome - This site was created by the Nemours Foundation's Center for Children's Health Media and aims to provide the best children's health information on the Internet. The information found here is written specifically for parents.

Learning About Fragile X
Learning About Hemophilia
Learning About Klinefelter Syndrome
Learning About Turner Syndrome - The National Human Genome Research Institute has prepared these guides.

MEDLINEPlus: Genetics - The National Library of Medicine has gathered links for a number of genetic diseases, click here to find the whole list. Here are some of the more common ones:
Klinefelter's Syndrome
Fragile X Syndrome
Turner's Syndrome

Muscular Dystrophy Association - The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans. One can find information about X-linked neuromuscular diseases at this site.

The National Fragile X Foundation - The National Fragile X Foundation unites the fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for fragile X syndrome. Comprehensive information on the syndrome can be found here.

National Hemophilia Foundation - Information on the types of hemophilia that are caused by an inherited sex-linked trait can be accessed in the Info Center section of this site.

TeensHealth: Muscular Dystrophy OR Turner Syndrome - This site was created by the Nemours Foundation's Center for Children's Health Media and aims to provide the best children's health information on the Internet. The information found here is written specifically for teens.

The Turner Center - Comprehensive booklets on Turner’s, Klinefelter, XYY, and Triple-X Syndrome can be obtained from this Danish site.