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Patient Education Information
Your
Genes, Your Health - This interesting site
uses multimedia to discuss Fragile X, Hemophilia, Muscular
Dystrophy and other genetic disorders.
Autism and Fragile X - Read more about the connection here.
Chromosome
X - This interesting site from the National
Institutes of Health is called a 'home reference guide'
to genetic disorders.
Facts
About Fragile X Snydrome - The National
Institute of Child Health and Human Development
(NICHD) is part of the National Institutes of Health.
Information on testing, diagnosis, and treatment
of the disorder can be found at this site.
Fragile
X Chromosome - Read more about the difficulties
of diagnosing the different X chromosome problems.
Families and Fragile X Syndrome - There is much good in this 'family album' sponsored by the National Institute of Child Health and Human Development.
MEDLINEplus
Medical Encyclopedia - Extensive information
including illustrations and links to related sites can
be found here. From the alphabetical list, choose topics
such as: Adrenoleukodystrophy, Albinism, Alport syndrome,
Becker’s muscular dystrophy, Colorblind, Duchenne
muscular dystrophy, Ectodermal dysplasia, Fragile X
syndrome, Hemophilia A and B, Hunter syndrome, Klinefelter
syndrome, Lesch-Nyhan syndrome, Menkes syndrome, Sex-linked
dominant, Sex-linked recessive, Testicular feminization,
or Turner syndrome.
Talking
Glossary of
Genetic Terms - The National Human Genome
Research Institute created the Talking Glossary of Genetic
Terms to help people without scientific backgrounds
understand the terms and concepts used in genetic research.
Turner Syndrome: The Basics - The Turner Syndrome Society offers this information.
Understanding
Klinefelter Syndrome - This guide will
discuss the causes, diagnosis, and health considerations
of the syndrome.
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