Recommended Web Sites

Juvenile Scleroderma Network - Founded in 1999, the Juvenile Scleroderma Network is the only national voluntary organization that works for all children affected by juvenile scleroderma and their families.

Limited Scleroderma (CREST Syndrome) - This information is from the Mayo Clinic.

MedlinePlus: Scleroderma - The National Library of Medicine provides these links to quality resources, including clinical trials.

Scleroderma Clinical Trials Consortium - Although designed for physicians, this web site contains a listing of medical centers doing research on scleroderma.

Scleroderma Foundation - The Scleroderma Foundation has a three-fold mission: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

What is Juvenile Scleroderma? - The Juvenile Scleroderma Network explains this disease.

What is Scleroderma? - The Mayo Clinic provides this indepth look at scleroderma; it discusses the signs and symptoms, causes and treatments of the disease, and has a special section on coping skills.